‘Yapatjarrathati’ means ‘to get well’ in Kalkadoon.
Kalkadoon Elders generously gifted us the use of this word for these research projects developed with, and for, their communities.
What are the projects?
The Yapatjarrathati team co-create solutions to support fetal alcohol spectrum disorder (FASD) in the rural and remote regions of North West Queensland.
Children in remote areas often go undiagnosed, or potentially wait up to three years for paediatric neurodevelopmental assessment. There was a pressing need for a locally accessible and culturally responsive approach to screening, assessing and supporting FASD.
The genuine co-design with local Elders, Aboriginal health workers and community members led to an Australian first—a model of care that implements the Australian Guide to the Diagnosis of FASD flexibly, with Aboriginal health workers holistically assessing neurodevelopment in primary care and guiding families quickly to support pathways.
Expansion of FASD Services in Queensland: Establishing Diagnostic Services in Remote Communities
- Download the final report for the Queensland Department of Health
Protocol for the Yapatjarrathati Project: A Mixed-Method Implementation Trial of a Tiered Assessment Process for Identifying Fetal Alcohol Spectrum Disorders in a Remote Australian Community
- Read the paper at BioMedCentral
Outcomes and needs of health and education professionals following fetal alcohol spectrum disorder specific training
- Read the abstract/paper at Journal of Pediatrics and Child Health
Yarning about fetal alcohol spectrum disorder: outcomes of a community-based workshop
- Read the abstract/access the paper at ScienceDirect
Community Advisory Group
Aunty Karen West
Aunty Joan Marshall
Aunty Betty Jack
Aunty Evelyn Neade
Aunty Topsy Rose
Aunty Julianne George
Aunty Edna Punch
Ms Kerry Major